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Working my way back

February 16, 2013

Today is day 14 of my new life!  Thanks to the miracles of  modern day science and the love, compassion and generosity of human nature I received what I needed to continue living.

There were only two options with this disease to live or die and I have been given life.

I have to dedicate a separate blog to my dear Scott who saved my life when he told me we have to go to hospital . Three weeks ago.   And that day is when  the miracle began…

I have a part of someone else’s loved one that has allowed me to live and I shall be forever grateful and keep a star blinking in the sky for them.

I am climbing my way back and nothing has helped more then all the words of support and encouragement that I have received from everyone of you.   Scott read everything to me when I was recovering that first week.  I was in a very scary place of confusion and pain ….not even sure how to use my new lungs.  How do I breath deep, i was constantly listening to make sure I was operating them properly.

My balance and walking are coming along nicely.   My clarity and focus are still wonky and my typing and writing are still off.

This past week I am adjusting to the medicine that I will be using the rest of my life to keep my body from rejecting my lungs.  My body wants to rid itself of this foreign part.  It is strong and wants to battle, so they have to try to knock my immune system down to keep it inline.

If only there didn’t need to be a fight and the body would accept but that is part of the understanding I need to get to with rejection.  If I had it my way ,I would say, in the words of Rodney King, ” why can’t we all just get along.”

Again I want to say that nothing has been better more healing than the power of faith,words of encouragement, prayers and sharing in the joy that I have received from everyone.

This past week my dear friend Kathy has been with me to advocate, ask questions, move me through the program and that much closer to the exit when I can finally breath in FRESH AIR!!!

Yesterday I got the last of my chest tubes removed so going home is a stones throw away…

DSCN3294

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27 Comments
  1. Alexa Murphy permalink

    Pam,
    You continue to amaze us with your grace and strength. Looking forward to the future when we can have drinks on a patio but also trying to remain present. The here and now. It sounds like a long road to recovery. We will continue to send you our prayers and positive thoughts. Be well.
    Lots of love,
    Alexa and Co.

  2. Maryann Skora permalink

    It’s wonderful to see a smile on your face. 🙂 It is so amazing to hear of your progress. Keep strong you r a inspiration.
    All my best wishes
    Maryann

  3. Theresa Wynn permalink

    Pam, I am Pat’s cousin from Edmonton. Your post is music to my ears!! I am filled with gratitude to the universe and to all of the earth angels that were supporting you (in all ways), pulling and praying for you. To the soul who has given the ultimate gift to save your life, I offer a prayer of thanks and peace.

  4. Pat Burns permalink

    Pure joy!

  5. cynthia taylor permalink

    Hi Pam – I hope by the time you read this that you have had that first ‘breath of fresh air’ or will be having that wonderful experience very, very soon.
    How good it was to read your post.
    Cynthia

  6. Stephanie Duncan permalink

    Sounds like you’re doing great, Pam! So glad to hear it!
    All my best wishes.
    Stephanie

  7. geez Pam, I’m so happy for you and Scott! What a crazy ride you’ve been on- great to know that things are going your way! I had psychosomatic breathlessness for several hours after reading through your blog…I had never considered how F’d up it’d be to have my lungs on the fritz. I’m so grateful for the donor program that affords you more life. My wish for you is that you continue to heal up smoothly! big love, keith.

  8. Kelly McManus permalink

    So fabulous. So joyous. So…you.

    Cheering and sending a bajillion hugs to you,

    -Kelly, Mike and Max!

  9. Helen permalink

    WOW! Pam, so great to see you breathing on your own, you look fabulous!!!
    And just in time for Spring Training! You will have your version of spring training 🙂 You can’t imagine Scott’s joy when this went down!! He has joy in his eyes again! – – the gift of life couldn’t have happened to 2 more beautiful people! xoxo Helen

  10. courtney permalink

    I am so proud of you pam! Cant wait until we can skype!

  11. Karen Saunders permalink

    Good to hear from you! It must feel liberating to get up and walk around. Kuddos to you and Scott for fighting the good fight. xok

  12. strohdrive@comcast.net permalink

    You look great Pam Keep doing what your doing your doing your a inspiration to us all

    Love The Illinois Stroh’s

  13. David Zierott permalink

    Pam,
    You look so healthy!
    David Zierott

  14. Kathleen Stroh permalink

    Miss Pam,
    What is with the blue jay’s hat? Have you lost favor with the Twins?
    Thank you so much for sharing your blog with us. You are a beautiful writer. I feel as if we are on your walk with you.
    We continue to keep you and Scott in our prayers of continued progress and prayers of thanksgiving for your return to good health.
    Scott is a keeper!!
    Hugs and love,
    Uncle Ben and Auntie

  15. BETTY AND NEIL permalink

    Hi Pam, You truly are amazing. You look amazing, and we are so happy for you, family and especially for your dad. Keep up the good work, and we ll keep up the prayers for a full recovery. We love you, Betty & Neil

  16. Michael, Sina, and Alycia permalink

    Pam,
    You look like a trillion bucks. You even have your smile(at least a smirk) back. Continue to feel well. Hope to see you soon.
    Love, Hugs, and Kisses,
    Michael, Sina, and Alycia

  17. Dan & Julia permalink

    Congratulations on two weeks! WOW you look so much better. We have a nephew who just celebrated 10 years since his heart transplant in Austin and he is doing great also. One tip: when you get home (and it sounds like it will be soon!) don’t put your rejection meds on top of the microwave. They did and it was a very expensive lesson. Just keep breathing.

  18. Frank Taylor permalink

    Thanks so much for the update, Pam. The difference between your photos before and after are amazing, and if you feel that your typing and writing are off then there’s a literary career ahead of you! What a thoughtful, inspiring and well-written blog. Your journey reminds us all how fragile this life can be and how important generosity, kindness, love and friendship are. It is so wonderful to hear of your progress – what a distance you have come in such a short time. Keep on keepin’ on, as they say. Please give my very best to Scott as well.

  19. Ellen Martin permalink

    I’m so happy to read every piece of your amazing story! Stay strong!
    xo Ellen

  20. Margaret Hebert permalink

    YEAH so good to hear from YOU. I think about you daily and also pray that your recovery will go well. Keep up the updates coming. Take care and God bless.
    Margaret

  21. Doug Kingsbury permalink

    Pam! Wonderful to see you up – you look great! I never knew I could be as grateful as I am to the generous human being who has given you the gift of life. Keep on getting stronger and better! Love, Doug and Bob

  22. darin permalink

    Pam- your courage,faith and determination to keep moving forward is truly an inspiration! Keep up the fight! Sending good thoughts and positive mojo!

  23. Ian Lehn Schmidt permalink

    Pam,

    You look awesome! I can’t wait for you to come back to Minnesota so we can enjoy the lake together. I am looking forward to playing ping pong and other games with you without you losing your breath. We also need to get out and fish together this summer.

    Keep getting better.
    I Love and Miss you,
    XOXOXOXOXOXOX,
    Ian

  24. Mary Beth Schmidt permalink

    Pam, You look absolutely amazing!!! Your strength and positive attitude is so admiring and that is what has got you where you are today. Everyday you will get a little stronger and closer to getting back to doing the things you love. I can’t wait to see you in just over a week.

    Love you,
    Your little sis
    Mary Beth

  25. Kathleen Grunden permalink

    I am so happy to hear this wonderful news! My brother recently celebrated 10 years with his new heart, absolutely no rejection, and he feels fantastic. I pray the same for you!

  26. Jessie Thomson permalink

    Pam I am so glad to see your beautiful face, blue laser beam eyes and rosy cheeks. Keep up the good work and get home soon. Love Jessie

  27. robert permalink

    Hi Pam, You look great! 100% better than pre-op. I guess you miss the boys, I doubt they will let the wieners in but maybe in a long bag?
    Robert and Elizabeth

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